CF Rally Ride
Saturday August 27th, 2011
What Is Cystic Fibrosis? Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that: In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond. Statistics
- About 1,000 new cases of cystic fibrosis are diagnosed each year.
- More than 70% of patients are diagnosed by age two.
- More than 45% of the CF patient population is age 18 or older.
- The predicted median age of survival for a person with CF is in the mid-30s.
Cystic Fibrosis Foundation (www.cff.org)
The mission of the Cystic Fibrosis Foundation, a nonprofit donor-supported organization, is to assure the development of the means to cure and control Cystic Fibrosis and to improve the quality of life for those with the disease.
The Foundation is the leading organization in the United States devoted to Cystic Fibrosis. It has more than 70 chapters and branch offices nationwide. It funds and accredits 115 CF care centers across the country, 95 adult care programs, which provide patients and families with vital treatment and other CF resources. In addition, 50 affiliate programs provide multi-disciplinary care for CF with Foundation support.
The Foundation is one of the most efficient organizations of its kind. The foundation has consistantly invested 90% of every dollar of revenue raised towards vital CF programs to support research, care and education. The National Institute of Health and many prominent publications, including Forbes and Wall Street Journal, have heralded the CF Foundation's innovative business model, which fuels drug discovery and development programs.
The Foundation has played an integral role in the development and FDA approval of four therapies that are now a routine part of treatment regimens for many with CF. The Foundation is actively supporting more than 30 potential new treatments current in development —that's more than in the entire history of the disease.
Because the Foundation receives no federal funding, it depends on the generosity of individual donors, corporations and foundations. Donors who give to the CF Foundation can be sure that their contributions will be used wisely and well.
CF Rally Ride
The mission of the Cystic Fibrosis Rally Ride is to bring awareness to the life threatening disease and raise funds to donate to the Foundation. The donations given to the Foundation play a crucial part in supporting efforts to enhance and extend the lives of cystic fibrosis patients and ultimately to find a cure.
The Rally Ride started in the summer of 2006. I (Jeremy Greene, born with CF in 1979) was looking for a way to bring awareness to the disease while spending time with family and friends. I have participated in other motorcycle Rally Rides and could not find a ride for CF in the Twin Cities. My cousin and I decided to start one and that's how the CF Rally ride was born!
Year one was a great success! Help from friends, family and local bars really made for a fun and rewarding day; we raised over $4,000. By 2009 we nearly doubled our donation amount to the CF Foundation by raising over $8,000. Our goal for the sixth annual run, which will be held Saturday, August 27th, 2011, is to exceed our 2009 donation amounts and meet more friends and family interested in helping find a cure for my disease. The ride has had an incredible amount of support from friends, family and local business in the past and I look forward to your ongoing support. Please take a minute to look at our sponsorship page and recognize them for the support they have given to the CF Foundation and CF patients like me..
